July 18, 2018


Spring 2019

Epilepsy Alliance America Board members meet in-person in Miami, Florida to create a strategic plan for 2019-2020 for Epilepsy Alliance America.

July 2019

November 2019

Epilepsy Alliance America attends Epilepsy Awareness Day at Disneyland for the first time, presenting regarding its mission, vision and services and programs provided by its member organizations.

December 2019

Epilepsy Alliance America attends American Epilepsy Society meeting in Baltimore, MD


May 2020

Jeff Sinsebox is elected Board Chair of Epilepsy Alliance America.


January 2021

Epilepsy Alliance America distributes 13,000 Seizure First Aid in the Age of COVID posters to schools across the United States as children return to in-school learning.

Spring 2021

Epilepsy Alliance America welcomed its first new three member organizations to the collaborative: Epilepsy Advocacy Network, Valley Children’s Healhcare – Epilepsy Support Program and South Carolina Advocates for Epilepsy (S.A.F.E.).

July 2021

August 2021

Epilepsy Alliance America hires Lisa Gallipoli as Chief Operating Officer and the first full-time staff person of the organization.

November 2021

December 2021


January 2022

Epilepsy Alliance America and member organization, Valley Children’s Healthcare, launch Rescue Medication Administration Video series, available in both English and Spanish.

September 2022

By September 2022, Epilepsy Alliance America had added six new member organizations to its roster, bringing the total number of organizations to seventeen. In 2022 the following organizations joined: JoshProvides, Sofie’s Journey, The Dravet Syndrome Foundation, Epilepsy Services Foundation, The LGS Foundation and Epilepsy Support Network of Orange County.

November 2022

Epilepsy Alliance America attends Epilepsy Awareness Day at Disneyland as an anchor vendor in the Expo, attending with more than 1,600 people with epilepsy and 3,400 caregivers and vendors. Epilepsy Alliance America sponsored the attendance of the Keeney family to attend the event. Attendance at Epilepsy Awareness Day at Disneyland kicked off November, National Epilepsy Awareness Month, which Epilepsy Alliance America recognized with the 2022 theme: Stronger Together: Connecting Epilepsy Communities.

December 2022



January 2023

Epilepsy Alliance America becomes the Managing Organization of the Seizure Action Plan Coalition.


Epilepsy Alliance America recognizes #1in26 day across its network of seventeen member organizations.

April 2023

Epilepsy Alliance America Board of Directors meets in Charlotte, North Carolina for a 2 day in-person strategy meeting.

June 2023

Epilepsy Alliance America awards the Lorna Myers PNES Scholarship to nine students. This brings the total awarded to students with PNES to more than $26,000 since 2020.

July 18, 2023

Epilepsy Alliance America recognizes the Five Year Anniversary of its incorporation.

What does membership with Epilepsy Alliance America mean to our member organizations?

Hear from some of our Board members – in their own words.