REAL EPILEPSY HELP
Epilepsy Alliance America is a group of epilepsy organizations which have been providing quality local programs and services for decades. Not all services are available in all areas. Contact your local epilepsy organization to find out which of these programs and services are available in your local community.
We offer a wide selection of camp programs, including day programs, weekend camps, and weeklong summer camps. These include camps for children, teens, and adults with epilepsy.
We host conferences, workshops, webinars, and more to teach people about epilepsy and how to help their friends and neighbors that are affected by seizures.
We help individuals with epilepsy who are seeking employment by offering resume and interview skills assistance, identifying available jobs, and providing training to employers.
We provide customized one-on-one support to individuals and families affected by epilepsy, based on the specific needs that are shared with our experienced and knowledgeable staff.
Information and Referrals
We provide information about epilepsy and connect people with other community resources and organizations which can provide additional support.
We can help you make sure your voice and your story are heard, by connecting you with your local legislators.
We provide medication assistance for individuals and families who cannot afford their anti-seizure medications.
We host networking groups and social events for people of all ages, providing opportunities for those impacted by epilepsy to meet others who are confronting similar challenges.
We provide a safe home for some individuals who are severely impacted by epilepsy and other coexisting conditions.
We train school staff, including nurses, teachers, and support staff, and students of all ages how to recognize and respond to seizures. We also provide training for first responders and other community organizations.
We can help you decide if a movement monitor might detect your seizures and connect you with resources that may be able to provide a monitor for free.
We can teach you about the rights of children with epilepsy in school and assist with special education services like Seizure Action Plans, 504 Plans, and Individualized Education Plans.
We host a variety of support groups for children, teens, adults, and parents impacted by epilepsy. These include groups that meet locally, as well as online groups.
Even if you are not sure what help you need, call your local epilepsy organization and we can talk through the programs, services, and community resources that might be right for you.
The Managing Epilepsy Well (MEW) was established in 2007 to advance the science on epilepsy self-management by conducting high-quality research across a network of universities, collaborating with community stakeholders to implement activities, and broadly disseminating research findings.