Lisa Gallipoli, Epilepsy Alliance America COO, hosted a virtual Expo Table at (virtual) Epilepsy Awareness Day in November 2021 and shared a little about ‘who we are and what we do’.  Here’s hoping we are in-person at Disneyland in 2022!

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Baton Rouge, LA:  Epilepsy Alliance America announced today that it will be providing 3,000 Seizure ID products to people with epilepsy who need them through a one-of-a-kind campaign in the epilepsy community. The Seizure ID Program is an initiative promoting safety and independence for patients with epilepsy.  The program will allow doctors and first responders […]

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Epilepsy Alliance America is a proud member of the Infantile Spasms Action Network (ISAN) – a collaborative network of 30+ national and international entities dedicated to raising awaress for IS.  ISAN is convened by Child Neurology Foundation. ABOUT INFANTILE SPASMS Infantile spasms (IS) are a rare, but serious type of seizure, occurring in one in […]

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Baton Rouge, LA, November 12, 2021 – Epilepsy Alliance America (EAA), a nationwide network of community-based epilepsy organizations dedicated to providing direct care, education and support services to people living with epilepsy and the people who care for them, announced today that it has released a new Acute Seizure Action Plan available on its website […]

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Thank you to Joyce Bender, Epilepsy Alliance America Board Member, for having Allison DeBattista and Liza Gundell, fellow Epilepsy Alliance America Board Members, as her guests on DISABILITY MATTERS on November 9, 2021 in recognition of National Epilepsy Awareness Month. You can listen to the recording here.  

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Baton Rouge, LA, November 8, 2021 – Epilepsy Alliance America (EAA), a nationwide network of community-based epilepsy organizations dedicated to providing direct care, education and support services to people living with epilepsy and the people who care for them, announced an initiative to recognize its member organizations and supportive third parties during November, designated as […]

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Epilepsy Alliance America is a proud member of the International Bureau for Epilepsy. In recognition of November as Epilepsy Awareness Month, the North America region of the International Bureau for Epilepsy is holding a VIRTUAL Epilepsy Forum.    Tuesday, November 16, 2021 6pm – 9pm ET Speakers: Dr Geoffrey Walcott – (Jamaica) – Psychiatrist LaKeisha […]

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Call to action: Are you a parent or caregiver of a child with epilepsy? Help researchers at Duke University understand how healthcare providers can best communicate information about Sudden Unexpected Death in Epilepsy (SUDEP). Participate in the survey via the link: https://redcap.duke.edu/redcap/surveys/?s=XRHHLDCKNO NOTE:  This is a research study at Duke University.  Epilepsy Alliance America is […]

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Epilepsy Alliance America is proud to be supporting Safe Step Act (HR 2163 / S464) This legislation would provide patients and providers with a clear and transparent appeals process when subject to step therapy protocols instituted by insurers. A medication step-therapy protocol establishes a specific sequence in which prescription drugs are covered by a group health […]

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Fireside Chat about Epilepsy Alliance America Epilepsy Alliance America Board members, Jeff Sinsebox and Adeola Sonaike, sit down with Eysz founder, Rachel Kuperman, about their work with Epilepsy Alliance America.

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