Epilepsy Alliance America is proud to promote SEIZURE ACTION PLAN AWARENESS WEEK 2022. From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The awareness campaign is supported by the Seizure Action Plan Coalition. Check out this video about Seizure Action Plans:  […]

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Epilepsy Alliance America is proud to be partnering with epilepsy advocates across the country working on seizure education in schools. You can learn more about the efforts of these advocates on the January 20, 2022 Talk About It with Greg Grunberg. Talk About It with Greg Grunberg is produced by The ‘Talk About It!’ Company […]

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WomenAndEpilepsy.org International Bureau for Epilepsy launches a special website for women with epilepsy Epilepsy Alliance America is a proud member of the International Bureau for Epilepsy Being diagnosed with epilepsy is a significant moment in anyone’s life but for a woman with epilepsy there are additional issues with which to contend, such as pregnancy, hormones, […]

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Epilepsy Alliance America joined 23 organizations representing people and families living with and affected by, the epilepsies urging Congress to maintain the Orphan Drug Tax Credit (ODTC). In late November, the organizations sent a letter asking Congress to remove a provision included in the Build Back Better legislation that would undermine the ODTC incentive by […]

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Epilepsy Alliance America proudly exhibited at the 75th Annual Meeting of the American Epilepsy Society in Chicago, Illinois on Friday, December 3 through Monday, December 7, 2021. Epilepsy Alliance America is a proud member of the Epilepsy Leadership Council (ELC), a coalition of organizations and advocates representing people with epilepsy and their families. The ELC […]

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Lisa Gallipoli, Epilepsy Alliance America COO, hosted a virtual Expo Table at (virtual) Epilepsy Awareness Day in November 2021 and shared a little about ‘who we are and what we do’.  Here’s hoping we are in-person at Disneyland in 2022!

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Baton Rouge, LA:  Epilepsy Alliance America announced today that it will be providing 3,000 Seizure ID products to people with epilepsy who need them through a one-of-a-kind campaign in the epilepsy community. The Seizure ID Program is an initiative promoting safety and independence for patients with epilepsy.  The program will allow doctors and first responders […]

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Epilepsy Alliance America is a proud member of the Infantile Spasms Action Network (ISAN) – a collaborative network of 30+ national and international entities dedicated to raising awaress for IS.  ISAN is convened by Child Neurology Foundation. ABOUT INFANTILE SPASMS Infantile spasms (IS) are a rare, but serious type of seizure, occurring in one in […]

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Baton Rouge, LA, November 12, 2021 – Epilepsy Alliance America (EAA), a nationwide network of community-based epilepsy organizations dedicated to providing direct care, education and support services to people living with epilepsy and the people who care for them, announced today that it has released a new Acute Seizure Action Plan available on its website […]

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Thank you to Joyce Bender, Epilepsy Alliance America Board Member, for having Allison DeBattista and Liza Gundell, fellow Epilepsy Alliance America Board Members, as her guests on DISABILITY MATTERS on November 9, 2021 in recognition of National Epilepsy Awareness Month. You can listen to the recording here.  

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