Call to action: Are you a parent or caregiver of a child with epilepsy? Help researchers at Duke University understand how healthcare providers can best communicate information about Sudden Unexpected Death in Epilepsy (SUDEP). Participate in the survey via the link: https://redcap.duke.edu/redcap/surveys/?s=XRHHLDCKNO NOTE:  This is a research study at Duke University.  Epilepsy Alliance America is […]

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Epilepsy Alliance America is proud to be supporting Safe Step Act (HR 2163 / S464) This legislation would provide patients and providers with a clear and transparent appeals process when subject to step therapy protocols instituted by insurers. A medication step-therapy protocol establishes a specific sequence in which prescription drugs are covered by a group health […]

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Fireside Chat about Epilepsy Alliance America Epilepsy Alliance America Board members, Jeff Sinsebox and Adeola Sonaike, sit down with Eysz founder, Rachel Kuperman, about their work with Epilepsy Alliance America.

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Thanks to the generosity of Dr. Lorna Myers who is donating the royalties of her book, PSYCHOGENIC NON-EPILEPTIC SEIZURES: A GUIDE, Epilepsy Alliance America has established a scholarship program for students with a diagnosis of psychogenic non-epileptic seizures (PNES). In 2021 the Epilepsy Alliance America awarded a select number of scholarships to students with a […]

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Epilepsy Alliance America is pleased to announce we have joined as a member of the Alliance for Comprehensive Testing (ACT), or ACT Against COVID. As a member of the alliance, we’re dedicated to educating the epilepsy community about the importance of and information on comprehensive COVID-19 testing. With the use of COVID-19 testing strategies, we can help protect our community and get […]

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The safety and well-being of those in the epilepsy community who were impacted by the widespread devastation caused by Hurricane Ida in both the Gulf region and in the Northeast are a top priority to Epilepsy Alliance America Though the storm hit over 10 days ago, many people remain displaced or without electricity, and finding […]

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Epilepsy Alliance America is proud to have joined the International Bureau for Epilepsy (IBE) as an Associate Chapter member.  EAA’s participation was ratified at the IBE’s General Assembly meeting on Friday, September 3, 2021. Epilepsy Alliance America is proud be part of the global epilepsy movement and a new member IBE. IBE is an international […]

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A special promo offer is now available for the EAA Network — a 30% discount off of regular priced Student/Family Caregiver tickets. The discount is available only through this special link. This year’s conference offers an exciting speaker line up, including keynotes, Ted Talk speakers, pre-conference film screening, and more! Read more about the conference.       […]

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Epidiolex®, a cannabidiol (CBD) oral solution by Greenwich Biosciences, is now indicated for the treatment of seizures associated with Lennox-Gastaut Syndrome (LGS), Dravet Syndrome (DS) or Tuberous Sclerosis Complex in patients one year of age or older. Read more about this development in Drug Topics. Learn More      

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In January 2020 the World Health Organization (WHO) declared the outbreak in China of a new coronavirus disease, COVID-19, to be a Public Health Emergency of International Concern. WHO stated that there was a high risk of COVID-19 spreading to other countries around the world. In March 2020, WHO made the assessment that COVID-19 could […]

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