The Seizure Action Plan Coalition began in 2020 as a labor of love between the LGS Foundation, Dravet Syndrome Foundation, and TSC Alliance. The organizations knew there was an opportunity to bring the epilepsy community together to bring attention and awareness to Seizure Action Plans for people with epilepsy. The three organizations served as the Governing Organizations of the coalition through 2022.
In the Fall of 2022, the Governing Organizations of the coalition approached Epilepsy Alliance America to be the new Managing Entity of the coalition. Epilepsy Alliance America became the managing organization of the Seizure Action Plan Coalition on January 1, 2023. Epilepsy Alliance America is committed to continuing this important work and expanding the reach and impact of the Coalition.
Learn more about the Seizure Action Plan Coalition and how you can get involved today.
Thank you to Neureka for sharing more about the Seizure Action Plan Coalition in anticipation of Seizure Action Plan Awareness Week 2024.