Legislative Advocacy Priorities

Epilepsy Alliance America is committed to helping grow the membership, reach and impact of the bipartisan Congressional Epilepsy Caucus which was launched by U.S. Representatives Jim Costa (CA-21) and Gregory Murphy , MD (NC-03).

Learn more about the Congressional Epilepsy Caucus:
Epilepsy Alliance America supports the Congressional Epilepsy Caucus – Epilepsy Alliance America

Epilepsy Alliance America supports the work of parent and patient advocates to ensure that legislation is enacted across the United States to ensure that students with epilepsy can attend school each day with the full knowledge that if their child has a seizure, school personnel will be ready to deal with it.Member organizations of Epilepsy Alliance America have been active in passing impactful legislation in their states to ensure seizure safety in their schools.

Epilepsy Alliance America supports the work of the National Epilepsy Advocates for Seizure Safe Schools, a grassroots network of advocates.

Epilepsy Alliance America, as one of the authentic national advocacy organizations serving people with epilepsy, supports all constructive efforts of professional medical organizations, industry, private sector, governmental and regulatory entities towards the evidence-based use of all potentially beneficial treatments for Drug Resistant Epilepsy (DRE). To this extent, we recognize and emphasize an urgency of optimizing investigative, regulatory, and administrative efforts to eliminate diverse obstacles towards this goal with respect to medical cannabis.Epilepsy Alliance America believes that the final decision on the use of medical cannabis, and any other legal and legitimate medical treatment, should be a result of a transparent and trusted discussion between the person with epilepsy, their family and/or caregiver, and the treating healthcare provider(s). People with epilepsy would be served best by consulting with their healthcare provider(s) if considering the use of cannabis and/or CBD products. Epilepsy Alliance America recommends that individuals with uncontrolled epilepsy, whenever possible, seek the services of a pediatric or adult epileptologist to help manage their epilepsy.

Epilepsy Alliance America has been a member of the American Brain Coalition since 2022.The American Brain Coalition (ABC) is a nonprofit organization comprised of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations. Together, the organizations seek to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public education and advocacy.