Epilepsy Alliance America is committed to public policy advocacy efforts which advance federal, state and community policies and programs that benefit people with epilepsy and those who love and care for them.
Epilepsy Alliance America’s member organizations engage in local, state and national public policy advocacy efforts as appropriate for their organizations and the constituents they serve.
Epilepsies Action Network
Congressional Epilepsy Caucus
Learn more about the Congressional Epilepsy Caucus:
Epilepsy Alliance America supports the Congressional Epilepsy Caucus – Epilepsy Alliance America
Epilepsy Alliance America is a member of this coalition which is working to keep telehealth accessible. The goal is to protect telehealth as a lasting, meaningful tool for patients and health care providers.
Seizure Safety in Schools
Member organizations of Epilepsy Alliance America have been active in passing impactful legislation in their states to ensure seizure safety in their schools.
Epilepsy Alliance America supports the work of the National Epilepsy Advocates for Seizure Safe Schools, a grassroots network of advocates.
Cannabis and/or CBD Products
Epilepsy Alliance America believes that the final decision on the use of medical cannabis, and any other legal and legitimate medical treatment, should be a result of a transparent and trusted discussion between the person with epilepsy, their family and/or caregiver, and the treating healthcare provider(s). People with epilepsy would be served best by consulting with their healthcare provider(s) if considering the use of cannabis and/or CBD products. Epilepsy Alliance America recommends that individuals with uncontrolled epilepsy, whenever possible, seek the services of a pediatric or adult epileptologist to help manage their epilepsy.
American Brain Coalition
The American Brain Coalition (ABC) is a nonprofit organization comprised of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations. Together, the organizations seek to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public education and advocacy.
Sign On Letters
About Epilepsy Alliance America’s Advocacy Efforts
If you have a question about Epilepsy Alliance America’s Advocacy efforts, or have an issue that you believe Epilepsy Alliance America and/or our member organizations should be aware of, please email us at firstname.lastname@example.org.
We encourage everyone to learn more about the Advocacy Issues that are important to the epilepsy community.
Reviewed and Updated: July 28, 2023