WomenAndEpilepsy.org International Bureau for Epilepsy launches a special website for women with epilepsy Epilepsy Alliance America is a proud member of the International Bureau for Epilepsy Being diagnosed with epilepsy is a significant moment in anyone’s life but for a woman with epilepsy there are additional issues with which to contend, such as pregnancy, hormones, […]

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Epilepsy Alliance America joined 23 organizations representing people and families living with and affected by, the epilepsies urging Congress to maintain the Orphan Drug Tax Credit (ODTC). In late November, the organizations sent a letter asking Congress to remove a provision included in the Build Back Better legislation that would undermine the ODTC incentive by […]

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Epilepsy Alliance America proudly exhibited at the 75th Annual Meeting of the American Epilepsy Society in Chicago, Illinois on Friday, December 3 through Monday, December 7, 2021. Epilepsy Alliance America is a proud member of the Epilepsy Leadership Council (ELC), a coalition of organizations and advocates representing people with epilepsy and their families. The ELC […]

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Lisa Gallipoli, Epilepsy Alliance America COO, hosted a virtual Expo Table at (virtual) Epilepsy Awareness Day in November 2021 and shared a little about ‘who we are and what we do’.  Here’s hoping we are in-person at Disneyland in 2022!

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Baton Rouge, LA:  Epilepsy Alliance America announced today that it will be providing 3,000 Seizure ID products to people with epilepsy who need them through a one-of-a-kind campaign in the epilepsy community. The Seizure ID Program is an initiative promoting safety and independence for patients with epilepsy.  The program will allow doctors and first responders […]

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Epilepsy Alliance America is a proud member of the Infantile Spasms Action Network (ISAN) – a collaborative network of 30+ national and international entities dedicated to raising awaress for IS.  ISAN is convened by Child Neurology Foundation. ABOUT INFANTILE SPASMS Infantile spasms (IS) are a rare, but serious type of seizure, occurring in one in […]

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Baton Rouge, LA, November 12, 2021 – Epilepsy Alliance America (EAA), a nationwide network of community-based epilepsy organizations dedicated to providing direct care, education and support services to people living with epilepsy and the people who care for them, announced today that it has released a new Acute Seizure Action Plan available on its website […]

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Thank you to Joyce Bender, Epilepsy Alliance America Board Member, for having Allison DeBattista and Liza Gundell, fellow Epilepsy Alliance America Board Members, as her guests on DISABILITY MATTERS on November 9, 2021 in recognition of National Epilepsy Awareness Month. You can listen to the recording here.  

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Epilepsy Alliance America is a proud member of the International Bureau for Epilepsy. In recognition of November as Epilepsy Awareness Month, the North America region of the International Bureau for Epilepsy is holding a VIRTUAL Epilepsy Forum.    Tuesday, November 16, 2021 6pm – 9pm ET Speakers: Dr Geoffrey Walcott – (Jamaica) – Psychiatrist LaKeisha […]

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Call to action: Are you a parent or caregiver of a child with epilepsy? Help researchers at Duke University understand how healthcare providers can best communicate information about Sudden Unexpected Death in Epilepsy (SUDEP). Participate in the survey via the link: https://redcap.duke.edu/redcap/surveys/?s=XRHHLDCKNO NOTE:  This is a research study at Duke University.  Epilepsy Alliance America is […]

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