Our Theme for November 2022 is Stronger Together Connecting Epilepsy Communities. Our campaign will feather the connections available for people with epilepsy and their caregivers.
Why are we focusing on Community?
78% of caregivers said that receiving a diagnosis helped them connect to other families, organizations, and communities, and 97% of those who formed connections reported that these groups are helpful. Yet less than 60% of neurologists are referring families to these types of resources.* Epilepsy Alliance America and our member organizations provide vitally needed connection opportunities for people affected by epilepsy.
*This statistic was provided by Child Neurology Foundation from data collected as part of the 2022 Needs Assessment. Over 1,513 caregivers and 152 neurologists participated.
Epilepsy Awareness Day at Disneyland Hotel
To Kickoff November, Epilepsy Alliance America and many of our member organizations will join together at Epilepsy Awareness Day at Disneyland. Hosted by our Member Organization, Sofie’s Journey.
2022 Statewide Epilepsy Conference (New York)
November 19. 2022: 9:00am – 1:00pm
Free Virtual Event hosted by the Epilepsy Coalition of New York State, Inc.
Epilepsy Education Day
This is a free event that we invite our families to where they can receive more information and education on topics relevant to those living with epilepsy. This year, we will be discussing ADHD & epilepsy.
Stronger Together: Connecting Epilepsy Communities
Saturday, November 12, 2022, at the Pittsburgh Airport Marriott
A one-day event featuring top epileptologists and medical, legal, and social service experts from around the region. General sessions and breakout workshops will offer up-to-date information on epilepsy-related topics focusing on pediatric and adult medical issues and a third with other epilepsy-related information.
Watch for the Capitol and Governor’s Residence to be Illuminated in Purple!