Epilepsy Alliance America proudly exhibited at the 75th Annual Meeting of the American Epilepsy Society in Chicago, Illinois on Friday, December 3 through Monday, December 7, 2021. Epilepsy Alliance America is a proud member of the Epilepsy Leadership Council (ELC), a coalition of organizations and advocates representing people with epilepsy and their families. The ELC […]

Read Full Post

Baton Rouge, LA:  Epilepsy Alliance America announced today that it will be providing 3,000 Seizure ID products to people with epilepsy who need them through a one-of-a-kind campaign in the epilepsy community. The Seizure ID Program is an initiative promoting safety and independence for patients with epilepsy.  The program will allow doctors and first responders […]

Read Full Post

Baton Rouge, LA, November 12, 2021 – Epilepsy Alliance America (EAA), a nationwide network of community-based epilepsy organizations dedicated to providing direct care, education and support services to people living with epilepsy and the people who care for them, announced today that it has released a new Acute Seizure Action Plan available on its website […]

Read Full Post

Thank you to Joyce Bender, Epilepsy Alliance America Board Member, for having Allison DeBattista and Liza Gundell, fellow Epilepsy Alliance America Board Members, as her guests on DISABILITY MATTERS on November 9, 2021 in recognition of National Epilepsy Awareness Month. You can listen to the recording here.  

Read Full Post

Epilepsy Alliance America is a proud member of the International Bureau for Epilepsy. In recognition of November as Epilepsy Awareness Month, the North America region of the International Bureau for Epilepsy is holding a VIRTUAL Epilepsy Forum.    Tuesday, November 16, 2021 6pm – 9pm ET Speakers: Dr Geoffrey Walcott – (Jamaica) – Psychiatrist LaKeisha […]

Read Full Post

Call to action: Are you a parent or caregiver of a child with epilepsy? Help researchers at Duke University understand how healthcare providers can best communicate information about Sudden Unexpected Death in Epilepsy (SUDEP). Participate in the survey via the link: https://redcap.duke.edu/redcap/surveys/?s=XRHHLDCKNO NOTE:  This is a research study at Duke University.  Epilepsy Alliance America is […]

Read Full Post

Epilepsy Alliance America is proud to be supporting Safe Step Act (HR 2163 / S464) This legislation would provide patients and providers with a clear and transparent appeals process when subject to step therapy protocols instituted by insurers. A medication step-therapy protocol establishes a specific sequence in which prescription drugs are covered by a group health […]

Read Full Post

Epilepsy Alliance America is pleased to announce we have joined as a member of the Alliance for Comprehensive Testing (ACT), or ACT Against COVID. As a member of the alliance, we’re dedicated to educating the epilepsy community about the importance of and information on comprehensive COVID-19 testing. With the use of COVID-19 testing strategies, we can help protect our community and get […]

Read Full Post

SAN FRANCISCO – June 15, 2021 PRLog — Eysz, a startup developing a digital health platform to enable personalized medicine for neurological disorders starting with epilepsy, announced today that Epilepsy Alliance America, a nation-wide network of community-based epilepsy organizations dedicated to confronting the spectrum of challenges created by seizures, has made an investment in Eysz’s via its Regulation […]

Read Full Post