IBE – Purple Day Panel – March 28 2022 WEAR YOUR PURPLE and join us for this informative discussion. There will be time for Q & A after each speaker and for the entire panel. VIA ZOOM (INFORMATION IS BELOW) The call will last approximately 90 minutes. TOPIC: Epilepsy Forum – IBE North American Region […]

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Baton Rouge, LA:  Epilepsy Alliance America (EAA), a nationwide network of community-based epilepsy organizations dedicated to providing direct care, education and support services to people living with epilepsy and the people who care for them, has launched a new training resource: On-Demand Seizure Recognition and First Aid Training for School Personnel. The training is available […]

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Epilepsy Alliance America is proud to promote SEIZURE ACTION PLAN AWARENESS WEEK 2022. From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The awareness campaign is supported by the Seizure Action Plan Coalition. Check out this video about Seizure Action Plans:  […]

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Epilepsy Alliance America proudly exhibited at the 75th Annual Meeting of the American Epilepsy Society in Chicago, Illinois on Friday, December 3 through Monday, December 7, 2021. Epilepsy Alliance America is a proud member of the Epilepsy Leadership Council (ELC), a coalition of organizations and advocates representing people with epilepsy and their families. The ELC […]

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Baton Rouge, LA:  Epilepsy Alliance America announced today that it will be providing 3,000 Seizure ID products to people with epilepsy who need them through a one-of-a-kind campaign in the epilepsy community. The Seizure ID Program is an initiative promoting safety and independence for patients with epilepsy.  The program will allow doctors and first responders […]

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Baton Rouge, LA, November 12, 2021 – Epilepsy Alliance America (EAA), a nationwide network of community-based epilepsy organizations dedicated to providing direct care, education and support services to people living with epilepsy and the people who care for them, announced today that it has released a new Acute Seizure Action Plan available on its website […]

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Thank you to Joyce Bender, Epilepsy Alliance America Board Member, for having Allison DeBattista and Liza Gundell, fellow Epilepsy Alliance America Board Members, as her guests on DISABILITY MATTERS on November 9, 2021 in recognition of National Epilepsy Awareness Month. You can listen to the recording here.  

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Epilepsy Alliance America is a proud member of the International Bureau for Epilepsy. In recognition of November as Epilepsy Awareness Month, the North America region of the International Bureau for Epilepsy is holding a VIRTUAL Epilepsy Forum.    Tuesday, November 16, 2021 6pm – 9pm ET Speakers: Dr Geoffrey Walcott – (Jamaica) – Psychiatrist LaKeisha […]

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Call to action: Are you a parent or caregiver of a child with epilepsy? Help researchers at Duke University understand how healthcare providers can best communicate information about Sudden Unexpected Death in Epilepsy (SUDEP). Participate in the survey via the link: https://redcap.duke.edu/redcap/surveys/?s=XRHHLDCKNO NOTE:  This is a research study at Duke University.  Epilepsy Alliance America is […]

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Epilepsy Alliance America is proud to be supporting Safe Step Act (HR 2163 / S464) This legislation would provide patients and providers with a clear and transparent appeals process when subject to step therapy protocols instituted by insurers. A medication step-therapy protocol establishes a specific sequence in which prescription drugs are covered by a group health […]

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