Webinar Series: Epilepsy and Developmental Disabilities
Webinar Series: Epilepsy and Intellectual and Developmental Disabilities
Rutgers’ Community Living Education Project (CLEP), in collaboration with Epilepsy Alliance America and its member organizations, hosted this webinar series on the intersection of Epilepsy and Intellectual and/or Developmental Disabilities (I/DD). These FREE webinars provide information and resources to benefit anyone with an epilepsy diagnosis, caregivers, and professionals.
RECORDINGS TO THE WEBINARS APPEAR BELOW
November 15, 2023: Seizure Triggers and Precipitating Factors
This webinar focuses on the precipitating causes of seizures or “seizure triggers”. While some factors are well known for precipitating seizures in all persons with epilepsy, such as missing medication, other triggers are specific to a given person. The session covers general, as well as specific triggers or precipitating factors. First aid for seizures is discussed at the end of the session to assure that participants have good information, along with resources for more information.
Presenter:
Patricia A. Gibson, MSSW DHL ACSW
Director, Epilepsy Information Service
Associate Professor, Department of Neurology
Wake Forest University School of Medicine
October 12, 2023: Special Considerations for Women with Epilepsy
This webinar addresses considerations specific to women who have epilepsy, including how hormonal changes affect girls and women with epilepsy, how ASMs (anti-seizure medications) may impact birth control (contraception), special consideration before, during, after the pregnancy and while breastfeeding. Discussions also include issues for mature women with epilepsy, including menopause and bone health.
Presenter:
Dipali Nemade, MD, MPH
Epileptologist, Orlando Health Neuroscience and Rehabilitation Institute | Neurology Group
August 10, 2023: Seizure Rescue Therapies, Seizure Action Plans, and Seizure First Aid
During this webinar, Dr. Labiner reviews the currently available options for rescue therapies for seizures and how to use them. Dr. Labiner discusses seizure action plans and who can benefit from these. Seizure first aid is vital for protection during seizures, and reviews this with precautions typically advised for patients and families affected by epilepsy.
Presenter:
Katherine Labiner, MD – Pediatric Epileptologist at Child Neurology Consultants of Austin, part of Pediatrix
July 12, 2023: Sudden and Unexpected Death in Epilepsy (SUDEP) and the Use of Seizure Detection Devices
Join the Danny Did Foundation as they discuss their programs designed to raise awareness and education for Sudden Unexpected Death in Epilepsy – SUDEP and the use of seizure detection devices. Resources will be shared, and an opportunity for questions and answers will be made available following the presentation.
Presenters:
Mary Duffy, Executive Director, Danny Did Foundation
Katie Gaughn, Program Manager, Danny Did Foundation
This series was announced in June, 2023.
This page was updated on November 15, 2023 to reflect the four webinars that took place and the links ot the recordings.