Preparing for your appointment
Sometimes, a lot can be discussed in a very short appointment. If you’re struggling to remember or understand everything that your doctor discusses with you, you are not alone!
Better Epilepsy Conversations Videos
Additional Tools available
Time to Talk about Seizures and Rescue Therapies
Ask your medical professional about your risk of SUDEP – Sudden Unexpected Death in Epilepsy
Child Neurologist New Visit Toolkit – Available in English and Spanish
from the Child Neurology Foundation
Finding a doctor that is a good match for you
There are many different options for medical providers for patients with epilepsy.
Epilepsy Alliance America recommends that individuals with uncontrolled epilepsy,
whenever possible, seek the services of a pediatric or adult Epileptologist to help manage their epilepsy.
What is the difference between an Epileptologist and a Neurologist?
Epileptologists are physicians that are trained to treat epilepsy and seizure disorders.
Neurologists are physicians that deal with the nervous system and disorders that affect it, including epilepsy, multiple sclerosis, stroke, and Huntingdon’s disease.
All Epileptologists are neurologists, but not all Neurologists are Epileptologists!
How to Find an Epilepsy Center
Visit the National Association of Epilepsy Centers to find an Epilepsy Center close to you.
If you are looking for a second opinion, to switch providers, or find your first provider, the most important thing to do is to check and see what physicians or hospitals are considered “in-network” for your health insurance company. This will save you money by not having to pay out-of-pocket for medical care.
