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CONNECTIONS 

Issue 14, January 2023

January 26 - 1 in 26 Day - Celebrate Epilepsy Warriors

January 26: #1in26day

 

Epilepsy Alliance America is proud to recognize 1 in 26 Day this January 26, which acknowledges the 1 in 26 Americans who will develop epilepsy in their lifetime. On this day, we celebrate all of our Epilepsy Warriors who are so much more than their diagnoses. Join us. 

Celebrate Epilepsy Warriors on January 26
 
Jeff Sinsebox and Peggy Beem Jelley

New Board Chair and Members for 2023

Peggy Beem Jelley started her term as Board Chair for Epilepsy Alliance America on January 1, 2023, taking the helm at the conclusion of Jeff Sinsebox's term. Peggy and Jeff are joined on the board by four new directors: Caitlin Bernard-Vincent, Sarah Dau, Erika Fleck and Angie Nelson. Learn more about our Board leaders and new members.  

 
Seizure Action Plan Awareness Week - February 13-20 2023

Seizure Action Plan Awareness Week: February 13-20, 2023

Join us for the Third Annual Seizure Action Plan Awareness Week this February.  The Seizure Action Plan Coalition is actively seeking additional Awareness Partners. Help us amplify important messages about Seizure Action Plans this February and all year long. 

 
EAA Board Members and NPAC members at AES

American Epilepsy Society Meeting: December 2022 

Epilepsy Alliance America representatives attended the American Epilepsy Society Annual Meeting in Nashville, Tennessee, on December 2-5, 2022. Board members, member organizations and members of the National Professional Advisory Committee had the opportunity to attend the meeting. It was educational, informative and impactful, and a great opportunity to be together IN PERSON!

 
Photo of a calendar

Save the Date: Applications for the Lorna Myers PNES Scholarships for the 2023-2024 school year will be available on February 1, 2023, and will be due to Epilepsy Alliance America for consideration by April 30, 2023.

What the EF Podcast

Released earlier this month, the What the EF podcast explores the annoying, beautiful, and traumatic aspects of life with epilepsy, couched in laughter to reach the epilepsy audience in an authentic manner. You can learn more about the podcast here. 

 
I completed Seizure First Aid Training - you can too
 
STEPS Discussion Guide Graphic
 
Seizure Action Plan Thumbnail
 

 

Seizure Recognition and First Aid Training - Your Way 

Learn more about Seizure Recognition and First Aid Training - available in-person and virtually by our member organizations - and On Demand - 24/7 on our website.  

 

 

 

 

S.T.E.P.S Discussion Guide  
With the right S.T.E.P.S. you can have stronger conversations with your healhcare provider and work together to reach your goals. Download the S.T.E.P.S Discussion Guide. 

 

 

 

 

Seizure Action Plans

A seizure is a medical emergency. A Seizure Action Plan lets others know what to do in an emergency situation.

Learn more today.

 

 

 

 

 
Seizure ID Program - I love my sleeve.  Erick, Age 34, South Carolina
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