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eNewsletter

Issue 9, July 2022

Epilepsy Alliance America Map

Thirteen Member Organizations and Growing

Epilepsy Alliance America is a growing national organization representing like-minded local, regional, statewide and national agencies serving the everyday needs of people who live with seizures and epilepsy. People affected by epilepsy need strong, service-minded organizations in their local communities doing their best work. We provide a place for organizations to share, collaborate and lift each other up while maintaining their independence and autonomy. During 2022, we added two organizations to our membership roster - JoshProvides and Sofie's Journey. Learn more about all 13 of our member organizations today.  

Meet our Member Organizations
 
Managing Epilepsy Well Network

Managing Epilepsy Well Network

The Centers for Disease Control and Prevention (CDC) supports the
Managing Epilepsy Well (MEW) Network, whose mission is to
advance epilepsy self-management by facilitating and implementing
research, conducting research in collaboration with network and
community stakeholders, and broadly disseminating the findings.

Some of the Epilepsy Alliance America member organizations are certified to conduct the MEW Network self-management programs listed above. Learn more about their offerings today.  

 

Congratulations to our Scholarship Winners  

2022 Scholarship Recipients

Thanks to the continued generosity of Dr. Lorna Myers, Epilepsy Alliance America has a scholarship program for students with a diagnosis of psychogenic non-epileptic seizures (PNES). Epilepsy Alliance America awarded four scholarships to students with a diagnosis of PNES in June 2022. 

 
Epilepsy Awareness Day at Disneyland
Learn more about Epilepsy Awareness Day at Disneyland
 

Spread the word about our tools and resources:  

I completed Seizure First Aid Training - you can too
 
STEPS Discussion Guide Graphic
 
Seizure Action Plan Thumbnail
 

 

Seizure Recognition and First Aid Training - Your Way 

Learn more about Seizure Recognition and First Aid Training - available in-person and virtually by our member organizations - and On Demand - 24/7 on our website.  

 

 

 

 

S.T.E.P.S Discussion Guide  
With the right S.T.E.P.S. you can have stronger conversations with your healhcare provider and work together to reach your goals. Download the S.T.E.P.S Discussion Guide. 

 

 

 

 

Seizure Action Plans

A seizure is a medical emergency. A Seizure Action Plan lets others know what to do in an emergency situation.

Learn more today.

 

 

 

 

 
Seizure ID Program - I love my sleeve.  Erick, Age 34, South Carolina
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