CONNECTIONS

Issue 32: May 2024

New eBook for School Personnel Available

Epilepsy Alliance America has partnered with PublicSchoolWORKS to design the  eBook, Improve School Safety: A Guide to Supporting Students with Epilepsy. This resource is for school personnel who are committed to creating inclusive and supportive environments where students and staff can thrive.

Care for Caregivers: A Dialogue with Marc Palmieri

Monday, June 10, 2024
7:00 p.m. ET / 6:00 p.m. CT / 5:00 p.m. MT / 4:00 p.m. PT

Caring for someone who is living with epilepsy can be challenging. Join us for an inspiring and informative virtual program and hear from Marc Palmieri, a masterful storyteller, but most importantly, the parent of a child with epilepsy.

Save your seat for this FREE webinar here.   

Check out our new webpage with Self Care Resources for Caregivers here.  

Join us in Disneyland this November

Epilepsy Alliance America is proud to be a national partner of the largest gathering of epilepy physicians and patients on earth: Epilepsy Awareness & Education Expo and Epilepsy Awareness Day at Disneyland. Registration is now open for the November 2024 event. This year, Epilepsy Alliance America, will be sponsoring a family to join us as our guests. Applications are due by June 15.  

What the EF Podcast

Founding member organization,Empowering People's Independence, made their What the EF podcast debut earlier this month. Collin Horak and Sarah Korba (Epilepsy Alliance America board member) talk about the importance of seizure recognition and response training in schools. Check it out here.

Tools you can use

Check out our new webpage: Practical Self-Care Strategies for Caregivers. Although it was released in May, which is Mental Health Awareness Month, these tips are important all year long.   

Seizure First Aid Posters, available in English and Spanish for the workplace and for schools, are available to download and print.

Additional versions are available at SeizureActionPlans.org. 

We have Video Demonstrations in English and Spanish to show the administration of the rescue medications your doctor may prescribe as part of your Seizure Action Plan.

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