Epilepsy Alliance America Stronger Together

Special eUpdate

Issue 24, October 18, 2023

SUDEP Action Day

Today is SUDEP Action Day

 

Talking about SUDEP, Sudden Unexpected Death from Epilepsy, can help reduce the risk. Knowing about SUDEP and discussing it with your health care team is important. Ask your medical professional about your risk:

  • How can you lower your risk?
  • What should you do if you have another seizure?
  • How can you prevent future seizures?
  • Are there treatment options like surgery, neurostimulation devices, or a dietary therapy that can reduce your seizures and lower your risk for SUDEP?
  • What should you do to reduce your risk of SUDEP if you have seizures at night?
  • Should you consider a device to warn someone that you are having a seizure?

Health Care Providers:

We have a toolkit available to educate clinicians on how to talk with families and people living with epilepsy about addressing epilepsy mortality risk factors. 

 
Understanding your Child's Risk of SUDEP
Understanding your Child's Risk for SUDEP
 

Registration is now open for the 2023 PAME Conference

 

Join us to learn about incidence, risk factors, and prevention strategies for mortality in epilepsy, plus hear about progress made and future directions for research.  

 
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Earlier this year, The Danny Did Foundation presented about their programs designed to raise awareness and education for Sudden Unexpected Death in Epilepsy – SUDEP and the use of seizure detection devices. This was the first in a series of webinars provided by Rutgers’ Community Living Education Project (CLEP), in collaboration with Epilepsy Alliance America and its member organizations.

 
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