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CONNECTIONS 

Issue 13, November 2022

Stronger Together Connecting Epilepsy Communities

It's Epilepsy Awareness Month

 

Our theme for November 2022 is Stronger Together Connecting Epilepsy Communities. Our campaign features the connections available for people with epilepsy and their caregivers. 78% of caregivers said that receiving a diagnosis helped them connect to other families, organizations, and communities, and 97% of those who formed connections reported that these groups are helpful. Yet, less than 60% of neurologists are referring families to these types of resources. Epilepsy Alliance America and our member organizations provide vitally needed connection opportunities for people affected by epilepsy.  

Learn how our member organizations are recognizing the month
 
Epilepsy Awareness Day at Disneyland Photos

Epilepsy Awareness Day was a great way to kickoff November

 

Epilepsy Alliance America is proud to have attended Epilepsy Awareness Day at Disneyland hosted by our member organization, Sofie's Journey. Over 4,500 people attended the incredible Expo for education and information. Wednesday, November 2, thousands turned the park purple for a day of fun and connecting. Special thanks to Brad and Candy Levy and their fabulous team for making this 10th anniversary event an incredible experience for everyone who was fortunate to attend.  

 

Stronger Together - 17 Member Organizations

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CONNECTIONS: Our eNewsletter has a name 

This month marks one year since Epilepsy Alliance America launched our monthly eNewsletter. Now it has a name - CONNECTIONS. We hope you will continue to enjoy this monthly resource.  

 

New Resources Added

Be sure to check out our Resource Library for new pieces, including our Seizure Preparedness Back to School Checklist and our School Advocacy Flyer. Download our new Activity Sheets. These are great tools for educating students about epilepsy.

Epilepsy Word Search
The Brain Coloring Sheet
 
I completed Seizure First Aid Training - you can too
 
STEPS Discussion Guide Graphic
 
Seizure Action Plan Thumbnail
 

 

Seizure Recognition and First Aid Training - Your Way 

Learn more about Seizure Recognition and First Aid Training - available in-person and virtually by our member organizations - and On Demand - 24/7 on our website.  

 

 

 

 

S.T.E.P.S Discussion Guide  
With the right S.T.E.P.S. you can have stronger conversations with your healhcare provider and work together to reach your goals. Download the S.T.E.P.S Discussion Guide. 

 

 

 

 

Seizure Action Plans

A seizure is a medical emergency. A Seizure Action Plan lets others know what to do in an emergency situation.

Learn more today.

 

 

 

 

 
Seizure ID Program - I love my sleeve.  Erick, Age 34, South Carolina
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