eNewsletter

Issue 12, October 2022

Our Network Continues to Grow 

Epilepsy Alliance America is proud to announce two new member organizations: Epilepsy Support Network of Orange County and LGS Foundation.  

Epilepsy Support Network of Orange County (California) is committed to building a community of support to improve the lives of those affected by epilepsy through education, programs and advocacy. The organization was founded in 2009 by a committed group of compassionate, vision-driven people determined to provide urgent support and essential services to the estimated 38,000 Orange County residents, and their families, living with epilepsy.

The Lennox-Gastaut Syndrome (LGS) Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support. Approximately 48,000 children and adults in the United States have LGS. LGS constitutes bewteen 3-4% of all children with epilepsy and 1-2% of all people with epilepsy.  

Do you work for, or with, an organization that would benefit from joining our network? Find out how they can join and proudly display the logo above!  

Learn more about our Membership Opportunities today.      

HOBSCOTCH: One-on-One Cognitive Coaching 

People with epilepsy commonly have problems with cognitive functions such as learning, concentration, and memory. These problems can occur for a variety of reasons, including the underlying cause of a person’s epilepsy, brain abnormalities, recurrent seizures, side effects of anti-seizure medicines, or any combination of these.

HOBSCOTCH was developed to help individuals with epilepsy adapt and work through various difficulties, including thinking or memory problems.

To sign up for the free program, email [email protected] and say you’d like to enroll in HOBSCOTCH.

Back to School Webinar and Tools 

Did you miss our Back to School webinar on September 13?  You can watch the entire webinar or part of it here. It's never too late to revisit your Seizure Preparedness Plan.  

Tomorrow, October 19 is #SUDEPActionDay22.

Talking about SUDEP can help reduce the risk of SUDEP.  Learn more and join the conversation.  https://www.epilepsyallianceamerica.org/sudep

Seizure Recognition and First Aid Training - Your Way 

Learn more about Seizure Recognition and First Aid Training - available in-person and virtually by our member organizations - and On Demand - 24/7 on our website.  

S.T.E.P.S Discussion Guide  
With the right S.T.E.P.S. you can have stronger conversations with your healhcare provider and work together to reach your goals. Download the S.T.E.P.S Discussion Guide. 

Seizure Action Plans

A seizure is a medical emergency. A Seizure Action Plan lets others know what to do in an emergency situation.

Learn more today.

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