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According to leading epilepsy experts, 1 in 26 people will develop epilepsy in their lifetime. And while epilepsy is considered the fourth most common neurological condition worldwide, there are multiple types of rare epilepsies. It is medically complex to manage rare epilepsies in patients. Our mission is to help raise awareness and garner support among the public and decision makers about rare epilepsy and provide hope, education, services and support for those living with rare epilepsy.

  • 65 million people worldwide diagnosed with epilepsy
  • 3.4 million people in the United States have epilepsy
  • 1 in 26 in the USA will develop epilepsy in their lifetime
  • 150,000 new cases of epilepsy are diagnosed in the US annually
  • 60% of epilepsy cases are from an unknown origin

Information You Should Know

Articles and White Papers on Rare Epilepsies